In this rare disease community, physicians didn’t fully understand the burden of the disease on patients’ lives or how prophylactic therapy could change the way patients live life with their condition.
NORTHERA— Understanding Symptom Unpredictability
For these older patients, helping to create the right conversation was the difference between having them suffer with debilitating symptoms and enabling them to get the relief they desperately needed.
Sjögren’s Syndrome— Encouraging Early Intervention
In this rare disease community, eye care professionals are on the front line for the treatment of a progressive autoimmune disorder. Raising awareness of the condition meant they could truly make a difference in the lives of their patients.